10 sats \ 2 replies \ @WeAreAllSatoshi 4 Sep \ on: September is Chiari Malformation Awareness Month ideasfromtheedge
My wife has this. It’s hugely affected her life. Crazy stuff.
write
preview
0 sats \ 1 reply \ @Cje95 OP 4 Sep
No way!!! Did she get the decompression surgery?? I have recently come across some people who haven't and just deal with the symptoms which I don't really understand tbh...
By any chance does she have EDS and POTS as well? All the people I know with Chiari have at least those two conditions and various others
reply
10 sats \ 0 replies \ @WeAreAllSatoshi 4 Sep
Yes she has had the surgery. Definitely helped out quite a bit.
Unaware of the other conditions, so I’m not sure
reply