Thank you for updating. I've had enough friends go through treatments to get the good/bad week thing. I'm also really glad to know folks set up a meal train. We were part of one for a friend who lost both her parents in a very short time, and I know how helpful those can be.
As things progressed from the bad days into better days, I found that I was really tightly wound and wasting a lot of time, looking at Nostr, actually just staring at my phone for no reason, feeling a bit lost - there is so much to do and yet it feels easier to not do anything than to do 1 thing in an endless list. This feels okay to a point, I do need to relax my brain, find outlets so I am not just working or dealing with household upkeep.
I'm sure you know this intellectually, but the caretaker getting self-care is incredibly important! You need downtime, and while both THC and screaming both may help (and it sounds like the former is particularly helpful with the kids), non-productive vegging is totally valid as well, if it works. Find a game, a light read, whatever, and during times when you're not actively caretaking, let your brain have some downtime without feeling guilt. Always having something to do is good short-term, but burnout can be awful.
You and your family remain in my thoughts. Wishing you the best.
Thank you for updating. I've had enough friends go through treatments to get the good/bad week thing. I'm also really glad to know folks set up a meal train. We were part of one for a friend who lost both her parents in a very short time, and I know how helpful those can be.
I'm sure you know this intellectually, but the caretaker getting self-care is incredibly important! You need downtime, and while both THC and screaming both may help (and it sounds like the former is particularly helpful with the kids), non-productive vegging is totally valid as well, if it works. Find a game, a light read, whatever, and during times when you're not actively caretaking, let your brain have some downtime without feeling guilt. Always having something to do is good short-term, but burnout can be awful.
You and your family remain in my thoughts. Wishing you the best.