Not so much a review as a recommendation to read.
The Diving Bell and the Butterfly (Le Scaphandre et le Papillon) by Jean-Dominique Bauby
What is it about (short version)?
Gut-punch exploration of the power of freedom and imagination in the face of truly terrifying adversity.
What is it about (long version)?
Jean-Dominique Bauby, was a journalist-editor of French Elle (a beauty and fashion magazine) who at the age of 43 suffered a stroke resulting in 'locked-in syndrome' where, despite maintaining full consciousness, he was unable to move his body except for his left eyelid. It is impossible to separate the process of writing the book, entirely through blinking, from the final work and I would encourage anyone to look further into his transcription method for it is truly inspirational and almost as remarkable as the writing itself.
The book comprises short chapters highlighting different aspects of his life, and incredibly he is often able to infuse humour and warmth into his observations. His reflections on life itself, love, and mortality resonate throughout and offer an appreciation for the beauty of the human experience in addition to demonstrating his profound longing for freedom from confinement. The contrast between his life before and loneliness he is reduced to after his stroke is dramatic and moving.
"My old life still burns within me, but more and more of it is reduced to the ashes of memory."
His story challenges common perceptions of disability and prompts the reader to a deep consideration of the issue. It is a true masterpiece (I acknowledge an overused term) that transcends the tragedy from which it is born, showing the strength of the human spirit and the power of storytelling. Life can be both resilient and beautiful despite a person being confined within.
"My diving bell becomes less oppressive, and my mind takes flight like a butterfly"
For me it sits alongside books such as Victor Frankl's 'Mans Search for Meaning' and whilst not in the detail it is certainly in spirit.
Definitely recommended 9/10